The next Research Breakfast will be held on 2 February online at Zoom. The subject of the event is 'Patient Engagement in Research: importance, experience and considerations'.
- Agenda
9:00–9:10
Opening
Agrita Kiopa, Vice-rector for Science, Riga Stradiņš University9:10–9:30
Patient Engagement in Research
Valentina Strammiello,
Head of Programmes at the European Patients’ Forum9:30–9:40
Q&A
9:40–10:00
Patient organisations in Latvia
Baiba Ziemele, Coordinator, Network of Patient organisations; Chair of the Board, Latvian Alliance for Rare Diseases; Chair of the Board, Latvian Haemophilia Society10:00–10:10
Q&A
10:10–10:30
Patients as research participants: how to meet ethics standards
Signe Mežinska, Dr.sc.soc., MS Bioethics,
Associate Professor, Faculty of Medicine; Senior Researcher, Institute of Clinical and Preventive Medicine, University of Latvia10:30–10:40
Q&A
10:40–11:00
Trust as a key precondition for the involvement of patients from vulnerable populations in research
Anda Ķīvīte-Urtāne, Ph.D., Mg.sc.sal.,
Director, Institute of Public Health; Associate Professor, Department of Public Health and Epidemiology, Rīga Stradiņš University11:00–11:20
Q&A
Discussion
- Video
- Presentations
Patient organisations in Latvia (in English)
Baiba Ziemele, Coordinator of the Patient Organizations’ Network in Latvia, President of the Latvian Alliance of Rare Diseases, President of the Latvia Hemophilia SocietyPatients as research participants: how to meet ethics standards? (in English)
Asoc. Prof. Signe Mežinska (Dr.sc.soc., MS Bioethics)Trust as a key precondition for involving patients from vulnerable groups in research (in English)
Anda Ķīvīte-Urtāne, PhD, Associate Professor, Department of Public Health and Epidemiology Director, Institute of Public Health
